Tuesday, March 13, 2012

Tuesday March 13

Went to UCLA to see another specialist today. He was very helpful and ran Tia through a number of interesting tests. No further results yet so we are still unsure as to why her counts are low (and not improving) and she is extremely fatigued. She can barely walk 10 feet without having to sit down and catch her breath.

We go back to City of Hope every Monday - Wednesday - Friday for Ablecet infusions. It is a full day but if anyone can drive, please let me know as I will need help next week (this week is covered with her sister Lou in town - she has been really great with Tia).

This week we will also be doing another PET SCAN to get a better idea of the white masses that are in her right and left frontal lobes.

We pass each day trying to get Tia to eat and walk a little and just wait for some answers. Hopefully we will get some answers this week.

Thx, Jess
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